Progressive Supranuclear Palsy (PSP) is a rare brain disorder. It slowly destroys brain cells turning people from fit and well to wheelchair bound and needing to be fed with a tube. My mum was diagnosed with PSP three years ago and before this I had never heard of the condition. Over the last three years I have watched my mum deteriorate before my eyes.  Mentally my mum was fine which somehow made it worse as she was aware of how she had become.

My wonderful mum lost her battle with PSP on Wednesday the 19th April. We are devastated and our world will never be the same. She was extremely ill during her last few days. PSP took everything she had. 

I have done a lot of research since my mum was diagnosed. There isn’t a reason why this happens and as of yet there is no cure. I am writing this to raise awareness of this awful disease. I am going to start raising money for PSPA (Progressive Supranuclear Palsy Association). Their aim is to improve the lives of everyone affected by PSP whilst funding research to find a cure. They get very little help as not many people know about the condition. It is often misdiagnosed as Parkinson’s disease, especially in the early stages. 

My mum’s funeral took place on the 11th May, and many people asked whether they should buy flowers or make a donation to a charity. This seemed like a good time to start fundraising. We are now planning a concert on the 11th November where we will draw a raffle with some amazing prizes!